Everyone who has taken part in this series has a life which involves SEND (Special Educational Needs and Disabilities) in some way; some of them choose to blog about it a lot, some a little but we all share an understanding of how different life can be.
If you have time to pop over to the main blog or Facebook page, and read or even leave a quick comment, I know it will be much appreciated.
So here we go with number eleven.....
**************
I'm Jenni & am 37 years old!
Who else is in your family and what are their ages?
Which members of your family have SEND (Special Educational Needs and Disabilities) or additional needs, and what are those needs?
My husband and myself are deaf , Reuben is currently undiagnosed (SWAN) and has severe learning disability, macrocephaly, white matter changes on brain, Hypermobility syndrome, Severe sleep disorder. Faith was diagnosed with a profound hearing loss and at the moment is mildly delayed but they believe she will catch up as she was very large at birth and they think this is why its taking her a wee bit longer to reach milestones.
My husband and myself are deaf , Reuben is currently undiagnosed (SWAN) and has severe learning disability, macrocephaly, white matter changes on brain, Hypermobility syndrome, Severe sleep disorder. Faith was diagnosed with a profound hearing loss and at the moment is mildly delayed but they believe she will catch up as she was very large at birth and they think this is why its taking her a wee bit longer to reach milestones.
Is there an official diagnosis and if so, what is it, at what age was it given and by who?
With Reuben there is no official diagnosis over all... he has undergone testing since he was 11wks old and is currently on the DDD study to try and get an official diagnosis.
Faith was officially diagnosed with a significant hearing loss at 4 wks old by the paediatric audiologist at hospital
Can you list the job roles of everyone you've been involved with on your SEND journey so far?
Are your children in school (if so, what type of school) or home educated?
Older 2 attend their local schools, Reuben attends a school outside of our catchment but in same town – its mainstream with a specialist provision unit attached and many disabled children attend mainstream with help. Reuben goes to mainstream full time with 1:1 at all times
Faith is still too young but I hope for her to attend the same school as Reuben as they are more experienced to cater for her needs
Tell us a fact or funny story about you or your life which is totally unrelated to SEND.....
**********
Jenni's blog is called Rainbow Dust and can be found at
She is also over on Twitter @mamajolly23 - https://twitter.com/
No comments:
Post a Comment
Comments are always very much appreciated and can really help the conversation go further...